All together

All together

Tuesday, September 2, 2014

Meet Max Brimhall

 3 year old Max was diagnosed with stage II Wilm's Tumor, kidney cancer, when he was 2 years old. He had surgery to remove the grapefruit sized tumor as well as his right kidney. He then had 20 rounds of chemo before he was finally considered to be in remission. He now goes in for scans and tests every 3 months to make sure the cancer doesn't return. He is a silly, energetic, happy, and loving little boy that is an inspiration and hero to all that have the privilege to get to meet him.

Meet Mariah

Written by Terra,

After years for trying for a baby the Teller family was finally about to welcome their newest member of their family, the much anticipated Mariah Teller. She came into this world and moved everyone around her from the very beginning it was obvious  this little girl was very special. People were drawn to her and she could always make people smile to be with Mariah was like the rays of the sun on a warm sunny day you always felt special and loved.
Mariah very quickly became the center of our universe. She loved to watch her brother play football, watch Yo Gabba  Yo, and was always looking for a laugh.
Mariah was always so concerned about everyone around her, she wanted people to be happy and felt loved.
One of my favorite memories was watching her dancing around the house singing.
She loved mac n cheese, and pizza, princesses, Nemo and Bubble Guppies.
She had a wolf hat that she loved to wear even in summer and church.
Mariah was vibrant happy healthy toddler.
July, 2010 Mariah started to get headaches we took her to Primary Children's  where our worst fears where realize
our angel the center of our universe was given nine to twelve months to live because of a DIPG tumor that is a 100% fatal. Mariah never felt sorry for herself a day of her life, she is the strongest person I know she took on everyday with a smile and a resilient attitude.
She showed us how to endure to the end with love in your heart and courage no matter what the out come.
Mariah is our hero.
We meet the mascot miracle foundation at their annual train ride, it was wonderful to see children's faces light up and forget about their illness while with the mascots.
My favorite memory is when Felix came to Mariahs princesses room revile, she loved having him around he made her laugh and brought her so much joy.
thank you for bring joy to our children's lives as they fight big battles.
                             
                            Teller family


Meet Rae

Written by Acelynn Rae's mom

When Raenalynn was born I knew right away that she was special. It wouldn't be till years later when I would find out exactly how special she was. She was perfect from her blonde hair to her pink toes. After birth, she had an issue with having a very low resting heart rate and had to stay in the special nursery for a couple extra days. They couldn't figure out the problem and chalked it up to being her normal. I never thought about it again. Rae has always been an exceptionally bright child. She was talking very early and has a love for learning. She hit all of Her developmental milestones early. In Dec of 2012, we noticed that she was walking funny. Hr right foot was turning in and she was starting to limp. It was only on occasion and since Rae does silly things all the time we just watched her. It got worse to where she was doing it all the time and began dragging her foot. In February, we took her to see her pediatrician who referred us to an orthopedic specialist at Primary Children's Hospital. The soonest we could see the doctor was April 1st. On St. Patricks day she started to lose the ability to use her right hand. The next morning we took her to the local ER who transferred us directly up to Primary Children's ER. We spent all day being seen by many different Neurologists who were 98% sure there was nothing wrong with her brain. But admitted us for a full brain and spine MRI the next morning. Rae was such a trooper and did so well. I, on the other hand, was falling apart. After she was returned to our room following the MRI, five doctors had come into the room to deliver the worse possible diagnosis. Raenalynn had a brain tumor. Diffuse Intrinsic Pontine Glioma (DIPG) is a tumor located on the brain stem. It is inoperable and 100% terminal upon diagnosis. Most children pass away between 9-12 months. There is no cure or treatment that has ever worked. Our option was radiation and oral chemotherapy to try and shrink the tumor to give her more time. She started radiation a couple days later. Over the last 17 months she has completed 30 radiation treatments, a full year of oral chemotherapy, 7 MRIs, a throat scope, a swallow study, and many more lab and hospital procedures. We have been very lucky to have had 17 months with her and her tumor has remained stable! She is the strongest kid I know! In Sept of 2014, Rae will officially be in the 5% of DIPG children who have outlived the normal prognosis.

We met the mascot miracle foundation through another DIPG family. Through our journey we have had the privilege of adding to our family many many people. A few of those are DIPG families themselves. Our sweet friend Brylee wasn't doing very well so they had an early Christmas party for her. One I will never forget. Felix the Falcon had dressed up as Santa for her and stole the show! We were invited to go on the North Pole Express in Heber with the mascots and boy was that a party! Leo the Lion was the only mascot Rae and her brother Xander were not afraid of. Since then we have gotten to spend a lot of time with the mascots at various fundraisers and events. Felix and Leo will always be Rae's favorite! They have put so many smiles on her face and are the subject of some very funny conversations. We support the Mascot Miracles Foundation and everything they stand for. They have become like family to us and we are so thankful to have been a part of them.